Showing posts with label Cancer. Show all posts
Showing posts with label Cancer. Show all posts

Friday, 30 May 2008

The Cancer Chronicles. Part 4

Clicky the links for Parts 1, 2 and 3.

I had no idea what was to come next. Which was probably just as well because if I had known I think I would have run screaming from the hospital. That day was about to fall into the "worst day of my life so far" category.

One thing you need to know at this point is that I am, or was then anyway, terrified of needles. It's a ridiculous and irrational fear I know, but one I suffer from nonetheless. I'd been through quite a few blood tests by this point and I could cope as long as I didn't think about, or see, the needles. But even now I get the shakes and cold sweats whenever I have to have a blood test.

Two technicians led me into a small room with a treatment table and some computer equipment. They got me to lie on the table and then placed a pillow under my neck so that my head fell backwards and exposed my neck. I was getting pretty nervous at this point, I knew needles were going to be involved as it was a biopsy. One thing these technicians seriously lacked was a bedside manner. Without any preamble, one of them said

"I need you to keep absolutely still, hold your breathe and do not swallow whilst the needle
is in place"

"Umm....are you not going to give me any anaesthetic or anything?"

"Oh no, by the time we've given you that injection this can be all done".

"Oh".

By now I was a wreck. I was shaking and sweating and my heart was thumping like a train.

The technician repeated her instructions to keep still, not breathe and not swallow. Now, breathing and swallowing are reflex reactions, and very difficult not to do, especially when someone tells you not to do them.

So I took a deep breathe and tried to lie still and then, THEN, she stuck that damn needle straight into my neck.

It felt like an eternity had passed before she finished and I was so relieved when it was over. It didn't hurt but the thought of what was happening scared me silly. I had just relaxed when the technician turned to me and said

"We haven't got a good enough sample, I'm going to have to do it again".

I have never fainted in my life but at that moment I could feel the edges of my world turning black and it took every effort to keep a firm mental grip on reality, and the side of the bed, to stop me sinking into that blackness.

Finally it was done and I could leave.

Two week later followed my first appointment with the Consultant at St George's Hospital, Mr Sharma. Oh my. I think I fell a little in love with Mr Sharma. It wasn't that he was particularly handsome, although he was quite cute, but his manner with patients was so good. He made me feel like I was the only patient he had in the world and that 110% of his focus was on me every waking moment of his day. I can't tell you how much that was to help. He began by telling me that thyroid cancer was very rare and that the chances of this lump being cancerous were very slim and that I was not to worry. Funnily enough, at that stage of events, I was not that worried. In a bizarre way having all these new experiences was all quite interesting....at least, it was once I'd gotten over the biopsy episode.

The bad news, however, was that the results of the biopsy were inconclusive and he would like me to have the biopsy done again.

At which point I burst into tears. The thought of going through all that again was more than I could cope with. I explained what had happened previously and he promised me this time it would be different. He suggested I speak to the consultant and ask them to talk me through what they would do. I did and she was absolutely brilliant. She explained that I would be given a local anaesthetic and that they would use ultrasound to make sure the needles went into the right place. What a different experience! The consultant made sure there was nurse sitting right by me and she literally held my hand for the whole procedure. She talked me through what was happening and I even managed to relax enough to look at the ultrasound screen to see what was happening. I won't say it was a pleasant experience but it was a lot easier to get through than the first one.

If there was a funny side to that episode it was that over the next day or two, my neck turned some interesting shades of purple with the bruising. At the same time, Himself had had some dental work done and he was missing his two front teeth whilst he waited for crowns to be fitted. It must have looked like we'd been beating seven bells out of each other!

The following week, I saw Mr Sharma again. The biopsy was again inconclusive. He explained to me that normal procedure would be to operate to remove the half of the thyroid with the lump on it so that the lump itself could be tested. For some reason, I burst into tears again. I'm not usually prone to tears but this was going to become a regular occurrence in his office. The only operation I'd ever had was a tonsilectomy when I was 5 and this operation was most definitely considered major surgery. The decision was mine but he recommended that we go ahead.

There was only one decision to make really.

Friday, 16 May 2008

Cancer Chronicles. Part 2

Part 1 can be found here.

Yes, contrary to my Consultants' advice I changed my job and dumped Fred. As I was living with him in his flat, this also necessitated a move of house too. But I'm getting a bit ahead of myself.

Firstly, I changed my job. In hindsight, that really was a stupid thing to do but it seemed too good a chance to pass up. I was getting nowhere in the job I was in and was passed over for promotion several times. In fact, several managers in my department and departments we worked closely with actually protested to the HR Department. Which was nice of them but still didn't get me that promotion. So I went to work for a competitor. I had to work out my three months notice but because of who I was going to work for, I was given gardening leave. Three months to do as I pleased on full pay and with my company car. That was great! But starting a new job when suffering the symptoms of hyperthyroidism was not so great.

The drugs the Consultant had me on to control the hyperthyroidism, Carbimazole, gave me hives. That was not so great. So then they switched me to Propylthiouracil. I had to take 24 tablets a day. Yep. 24. Apart from rattling like a box of pills, these tablets affected my eyes. About 1/2 hour after they kicked in I would start to get double vision and incredible light sensitivity in my eyes for a couple of hours. For about 6 months I was either seeing the Consultant or speaking to her Registrar to get some explanation for this but nothing. It wasn't a recognised side-effect and so it seemed there was absolutely nothing they could do and I just had to live with it.

During this time came the final blow-out with Fred. His father, whom I adored, had passed away from cancer. Within 6 months his step-mother was tragically killed in a car accident. It was a terrible time and Fred, who was already addicted to tranqulisers, could not deal with everything that had to be done in the aftermath of that. He needed an emotional crutch and I was that crutch. His sister lived in New Zealand so dealing with all the nitty-gritty stuff such as lawyers and clearing their house fell to me. I didn't mind doing it at all. It's what you do isn't it? Support your partner in times of crisis.

Then I had my own family crisis (that's a blog story unto itself), and Fred's response? In the most bitter tone he could summon he told me to "Deal with it". He wanted nothing to do with it at all. I was astounded, hurt and a line had been crossed. I packed my bags and left.

The doctors, meanwhile, decided that, as the drugs were not doing their job in suppressing my thyroid function, a more radical approach was needed. So an appointment was made at St Thomas's hospital in London for me to have radio-iodine treatment. This involves nothing more complicated than drinking a small glass of water with a carefully measured dose of radio-active iodine in it. The principle behind this treatment is that the thyroid gland takes up the iodine and part of it would be "switched off", thereby reducing the the hyperthyroidism. For a week after the treatment I was not allowed to be within 4 metres of anyone for more than an hour. I had to have my own bedlinen, cutlery and food and was not allowed to prepare food for anyone else. Which was fun, particularly as it completely freaked out the friends that I went to stay with for the duration! What did make me giggle was the huge sign in the hospital which said "You will NOT glow in the dark"! The only downside to this treatment was that I had to come off all medication for three weeks prior to receiving it. I was crawling the walls. The full onslaught of hyperthyroidism left me exhausted but unable to sleep and everything was done at 100mph. I drove my friends nuts!

But the treatment was successful and for several years all was well and my thyroid functioned normally and life got back on track.

But I had no idea how hard it would come back to bite me on the ass a few years later.


To be continued.....

Wednesday, 14 May 2008

The Cancer Chronicles. Part 1

I've made the odd reference throughout this blog to the fact that I have had cancer but with a whole new audience now, and judging by some recent comments, I guess some of you didn't know. Which kind of ties in with a growing need in me to write down the whole story. Not for any reason other than it should be chronicled somewhere. It's certainly not for sympathy, I couldn't deal with that then and there's no need for it now. But maybe there's someone out there somewhere going through what I went through and it might just be helpful to them too. Perhaps, more to the point, it's a cathartic exercise I need to banish the ghosts so that I can look back on it in 20 years time and think "yes, I did get through that".

I will do this in installments because it will make for much too long a post otherwise. The first part doesn't really deal with the cancer at all but is connected, albeit tenuously, and I think it's important to include it.

The story starts back in 1992. I lived with a chap we shall call Fred. Fred was a highly intelligent drunk. Life with him was not easy. He was fine until he had one drink and then he could not stop until he passed out. I lost count of the number of times I had to try and pick him up off the bathroom floor and haul his ass into bed. He was kind enough in his own way but, even when sober, he could get verbally abusive. You know that consistent digging away at your confidence and judgement? It finally reached the point where I lacked any confidence in myself and truly believed I was as stupid as he told me I was.

Three years into our relationship, I started to lose weight. But I was in happy as a pig in clover! For the first time in years I was back in a size 10 (US 8) and looking trim. I had energy in spades yet slept the sleep of the dead. Unfortunately, Fred had received some basic medical training as part of his science degree and over the ensuing months diagnosed me with any number of diseases, the worst of which was stomach cancer. You can see the positive effect he had on my psyche can't you?

Winter rolled into summer and I can remember what happened next as clear as day. I was sitting in profile to Fred and he suddenly exclaimed "What's wrong with your neck!?". What on earth was he on about now?

"It's all swollen"

He was right. How could I have not noticed that?

"I know what's wrong with you" he said. "You have an overactive thyroid."

I do? Well, OK, at least that was better than stomach cancer.

I made an appointment with my doctor and explained about this goitre on my neck.......

(Image courtesy of Google)

...and how Fred thought it was an overactive thyroid. Annoyingly, she agreed and sent me off for blood tests. In the meantime, Fred remembered he had private health cover so my GP arranged for me to see a consultant privately within a few days.

Having seen the blood test results, she too agreed and started me on medication to control the hyperthyroidism. She also gave me some sage advice. She said "Your hormones are going to be all over the place so my advice to you is not to make any radical life-changing decisions until you are somewhere nearer to normal...don't dump your boyfriend, change your job or move house".

I did all three.

To be continued....


Wednesday, 1 August 2007

It's all a bit crappy really. PartTwo.

Details of "It's all a Bit Crappy Really" Part One here.

This time it's the turn of St George's hospital where I went yesterday for my regular check-up. Bloods were fine so that was good. Not so good is the small, pea-size lump I have noticed developing on the side of my neck. I had expected them to tell me it was normal and not to be concerned. Instead they whipped me down the corridor to make an appointment for an ultrasound.

It's probably absolutely nothing more than a slightly enlarged lymph node, which could be enlarged for a variety of reasons and much more likely to be from a harmless infection than to cancer.

But I can't but help be a bit concerned. This is the second scare in a year so please excuse me if I spend a day or two wallowing before putting it to the back of my mind before the scan on 21st August.

Wednesday, 1 November 2006

Woot!!

Been back to the Royal Marsden this morning for my test results......BACK TO NORMAL, THE CANCER HAS NOT COME BACK!!

They have taken another blood test just to be sure but it's looking like the blip was just that, a blip. They can't explain it but it does apparently happen sometimes for no explicable reason.

Yay!

Wednesday, 27 September 2006

So far so good

Had the ultra-sound scan at the Royal Marsden this afternoon and the great news is that there doesn't appear to be any thyroid growth, at least, "nothing worth doing a biopsy on" was the radiologist's comment. Mind you, last time I had ultra-sound and a biopsy the radiologist said it didn't look like there was anything nasty there and it turned out to be very nasty indeed so I'm not counting my chickens just yet but am allowing myself to feel just a bit relieved!

Also had some more blood tests and will get the results of all the tests from the consultant next week.

Tuesday, 26 September 2006

Side-Effects

Possible side effects from the Thyrogen injections, as listed by the company that makes the drug are, among others, weakness and fatigue.

They are not wrong.

Monday, 25 September 2006

Ouch

So, off to the see my local Practice Nurse for the first of my pre-scan Thyrogen injections this morning. Never having done one of these injections before, the nurse studied the instructions carefully. I noted the same blank look on her face that must have been on mine when I read them.

Me (fearing the worst) : "They don't say where to give the injection do they?"

Nurse (confirming the worst): "No, but as it's intramuscular I'm afraid it's in the bum"

Me: "Oh"

Nurse: "Hold on, I just need to find a bigger needle"

Me: "Oh crap"

You'd think that after almost 15 years of having needles stuck in me that I'd be used to it by now wouldn't you? I mean, the last stay at the Royal Marsden resulted in them trying to get blood samples out of my feet because the veins in my arms had closed up in protest. Let me tell you, needles in the feet hurt. But no, needles still have the ability to turn me into a quivering, shaking wreck. And just to add to my misery I had to bend over with my jeans around my knees with my bum bared to the world.

And guess what? I have to do it all over again tomorrow.

Wednesday, 6 September 2006

It's all a bit crappy really

Four years ago I was diagnosed with Follicular Thyroid Cancer. As cancers go, it's one of the better ones, if there is such a thing, as it is fairly easy to treat. Two operations to remove my thyroid gland and a week at the Royal Marsden hospital to have a dose of radioactive iodine treatment to remove any remaining thyroid cells - that was pretty interesting as I had a week in total isolation with my very own Geiger counter in the ceiling! Since then I have had annual check-ups at both St George's Hospital (where I had the surgery) and at the Royal Marsden. The tests check to make sure that the level of Thyroxin medication I'm taking is correct and to measure for any Thyroglobulin - Thyroglobulin is used by the thyroid gland to produce the thyroid hormone Thyroxine - and, as I shouldn't have any thyroid cells, I shouldn't produce any thyroglobulin.

This morning I had my annual appointment at the Royal Marsden and was told that there's been a "blip" in my thyroglobuline levels, indicating that there may be some thyroid cells regenerating. Now, that doesn't necessarily mean that the cancer is back with them. But it might be. And that's a bit scary.

The Royal Marsden being the Royal Marsden, they don't piss about and straight away I was sent for a chest x-ray and to book an ultra-sound scan. I'll have that scan on 27th September and on the two days prior to that, I have to go to my GP surgery to have thyrotropin injections - if the thyroid cells are present, the thyrotropin will stimulate the cells and make them more visible on the ultra-sound.

Watch this space.